Friday, September 9, 2016

"Here are five reasons why CRISPR and disability are dangerously intertwined, exemplifying why we need the perspectives of people with disabilities weighing in on this debate"

Emily Beitiks explains: 

When cures and the end of disability are always cast as “just around the corner,” it continues to make it harder to fight for what we need today. We continue to invest millions of dollars on anything that might help us eliminate disability, and yet people with disabilities are still struggling to make our society more accessible with things people could be using right now, for these social changes are always framed as “too costly.” This doesn’t mean that we need to be entirely anti-cure and certainly not anti-research, but again, we need people with disabilities to play a central role in this debate. A diversity of voices speaking to their experiences with disability can teach us that we don’t need CRISPR to “solve” the disability = tragedy equation. Social changes to the built environment and cultural changes to discriminatory attitudes are a safer bet with more widely shared impacts.

You can read the entire excellent article here.

1 comment:

  1. Wolbring, G.; Diep, L.(2016) The Discussions around Precision Genetic Engineering: Role of and Impact on Disabled People Laws, 5(3), 37; doi: 10.3390/laws5030037

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